By Ruth Pinder
An research of the distinct courting which exists among medical professionals and sufferers with continual illnesses. It files the studies and attitudes of 18 GPs in the direction of Parkinson's ailment and contrasts those with a gaggle of sufferers who even have this sickness.
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Extra info for The Management of Chronic Illness: Patient and Doctor Perspectives on Parkinson’s Disease
Example text
It would be misleading to describe such manoeuvres pejoratively as an unhealthy, if not pathological, denial to be worked through. For these patients they formed a vital part of their survival kit-and in this they had much in common with Avoiders. Avoiders: '] think probably I'd have been more unhappy. There was a long period when] was being treated. O. This came as a surprise, as it challenged my own views about the right to know--even a moral imperative that one ought to know-if not for oneself, then for the sake of family and friends.
These GPs had more flexible views about their patients. Correspondingly, responses could be tailored to meet individual needs without provoking too much anxiety. Indeed, doctors needed to know what was happening in order to target their explanations sensitively and effectively. Sharing information-and its attendant uncertainties-was in itself liberating as we shall see in more detail later . What Patients Can Cope with: 'Blinding them with science doesn't help. It really makes them more anxious and frustrated' The fear of distressing patients (and its assumed consequences) was also important in governing what doctors chose to say.
Yet, as we shall see, the situation was not nearly so straightforward. The previous chapter has shown how GPs reduced the potential ambiguity and discomfort of giving explanations by the use of beliefs and routines. For patients, the experience and management of the uncertainties involved in understanding what to expect were crucially different. With the diagnosis of his/her illness, the patient faces new uncertainties. What is likely to happen, and when? What does it mean for everyday life, work and the family?